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Consumer advisory for Kansans: Protect genetic data
Kris Kobach
Kris Kobach

TOPEKA – Attorney General Kris Kobach issued a consumer alert warning Kansas residents of the recent bankruptcy filing by 23andMe, a direct-to-consumer genetic testing and information company. 23andMe filed for Chapter 11 bankruptcy on March 23. The company said in a press release, “There are no changes to the way the Company stores, manages, or protects customer data.” However, the bankruptcy raises the risk that 23andMe may attempt to sell Kansans’ genetic data and other private information as part of the bankruptcy proceedings.

“Protecting Kansans’ personal information and genetic data is of the utmost importance to our office. Because of the company’s current financial situation, we encourage Kansans to consider requesting deletion of their genetic data held by 23andMe,” Assistant Attorney General Sarah Dietz said.

Kansas residents should be aware of their rights and the protections afforded to their genetic data under the Kansas Consumer Protection Act (KCPA) and the Wayne Owen Act. 


How to Take Action

If you wish to rescind access to your genetic information and request the destruction of your test sample, follow these steps:

1. Sign in to your 23andMe account at www.23andme.com.

2. Navigate to your profile’s “Settings” section.

3. Scroll down to the “23andMe Data” section at the bottom of the page.

4. Click “View” next to the “23andMe Data” heading. 

5. If you would like to keep a copy of your existing genetic data, download your data before continuing. 

6. Locate the delete data option.

7. Select “Permanently Delete Data.”

8. Check your email for a confirmation link and follow it to complete the deletion process.


Destroy your test sample 

If you previously chose to allow 23andMe to store your saliva sample and DNA but would now like to opt-out, you can update your settings by going to “Preferences” on your account page. 


Revoke Permission

If you previously consented to 23andMe and third-party researchers to use your genetic data and sample for research, you may withdraw consent from the account settings page under “Research and Product Consents.”

Visit the Office of the Kansas Attorney General’s website for more information on your rights under the KCPA and the Wayne Owen Act, guidance in managing your data, or to file a complaint.